How The Vns Implant Healed My Depression After 35 Years
Friday, January 4th, 2008Thirty five years ago, when I felt sick or down, it could have been anything. Medicine was not so advanced, nor was I at my own self-diagnosis, of which I had many. I was sure I had depression as it ran in my family. I labeled it depression, took it to the m.d. and he bought in.
After about six or so meetings, I realized nothing was getting better, and decided nothing was wrong except that I was suffering the same pressures and anxiety that everyone else did in life. But it was not to be. Nothing could have been further from the truth.
Then I decided that if I could land a decent job with a great salary, all my maladies would suddenly disappear I landed a job as chief writer and editor at a major network in Washington, D.C. At age thirty six. By age thirty seven, I had read enough about depression to know I had it. I immediately took action and visited a local psychologist who brought a psychiatrist aboard to try a combination of talk and medicine therapy. Year after year I religiously attended my therapy meeting and took my myriad of pills, combinations of pills, changing pills, increasing dosages of pills, etc. Nothing worked yet the medical community continued to applaud me for doing so much better. I begged to them that nothing had changed (I knew how I felt inside my body a lot more than they did), but they insisted the changes were so subtle, I would surely notice if I stopped taking my medicines and discontinued therapy. I did just that. No difference whatsoever. By then, I could barely work much less get out of bed. I made myself do it. I still don’t know how, but felt I needed to.
By 1994, still very “depressed”, I figured I better live my dream and live it fast. I would have to write a blockbuster screenplay so moved to Los Angeles and started taking classes. I wrote several full-length motion pictures. I was sinking yet deeper into depression. I was certain that if just one of the films would make it, I would be happy forever. What a fools game and I was playing it like the fool I had become. I was now on a relatively new class of drugs called SSRI’s or Prozac. They told me if this didn’t help, probably nothing would. It did not help.
Then my mother, living alone in Mississippi fell ill. I returned home to care for her. This served to give me a purpose, as she had cared for me as a child, and I felt okay on some days.
Though I rarely had time to read magazines, one afternoon whil etaking mom to the doctor, I picked up a New Yorker in the waiting room. There was an article about a new experimental treatment called VNS (Vagus Nerve Stimulation) for something called TRD (treatment resistent depression). It was more common than once thought. The symptoms were explained and they were identical to mine. Though it had been available on the market for TRE (treatment resistent epilepsy) it was not yet available for TRD. But a small manufacturer, Cyberonics in Houston, the manufacturer of it, was in battle with the FDA and other powers that be.
My mission to follow the activities of Cyberonics became obsessive. I knew this was my only hope. It taught me a great lesson in patience. It was not approved for another eight years.
The battle of Cybernoics vs. the pharmaceutical ane medical establishment was fierce. Cybernonics and patients had everything to gain, the medical community everything to lose (patients). Cybernonics eventually, thank God, won.
Since I continued to “be punished” in my hometown (was very disenfranchised by then), I started to research. My search was focused on towns with low cost of living, high quality of life, and an advanced medical community. I was not finding any of that at home. Surprisingly Hot Springs, Ar became a top choice. The major medical community was in Little Rock, less than an hour away and UALR Medical Campus was considered one of the most advanced in the country (to my surprise). It’s name was and is up there with many more familiar names like Sloan-Kettering, M.D. Anderson, and Johns Hopkins.
In September of 2005, I finally heard that VNS therapy had been approved by the FDA for treatment of TRD. To my knowledge, it was the only medical modicum that had been approved for such.
Now the problem was how to “get my name on the list”. So I called Cyberonics and they turned me over to a nurse/caseworker, who got right on the case. She found the (very few) surgeons who performed this one hour procedure, and she had to talk my insurance into covering it based on my medical history of years of no results.
On January 25, 2006, almost nine years after I first started following the news of the VNS implant, I received the procedure in Little Rock, Ar. at St. Vincent’s Hospital.
I remember waking up and feeling very light. Something had happened, but I was not sure what. I knew almost immediately that I’d gotten the procedure. I asked a nurse if “it was in” and she assured me it was.
For the first time since I was about twelve years old, I felt no depression? I still had some anxiety but it was based on thinking “my mood is about to swing any minute and there is not a damned thing I can do about it”. Minutes passed by and then hours. No mood swing. I felt like a child playing in the sandbox in kindergarten My worries and stresses were minimal.
Every month, I continued to go to Little Rock for a computerized non-invasive “tune up”; the doctor merely turns up the frequency another notch. It is at a point now where it is every three months and by the end of the year, the depression will be in total remission.
How is my progress? Amazing. I can remember like yesterday that I could not get out of bed, it was a huge chore to clean my home, studying was a brutal task as was work, and all that changed. I love what I do, I do it well, and do it joyfully. Today I am a cartoonist and etailer and full time student, have a wonderful girlfriend, and all kinds of doors opening that were closed, due to my having a undiagnosed disease, and at that, one that was not only socially-unnacceptable but one that a lot of people do not believe exists.
My faith has been renewed in both a higher power, people, and the medical community. It had been long-gone for a good many years.
Is the depression cured? Heaven’s no. But today, I can easily call it “temporary blues”, the type any person could get.
I heard it again and again, keep this to yourself, Rick. The world is not ready to hear about this kind of disease and recovery. We still live in a bit of a puritan world.
My reply is “So what? Let them use it. If one person reads this with TRD and learns about it, and is fortunate enough to receive the implant, people can use it against me all they want. Doesn’t matter in the least. Let one person get well from this most dreadful disease and it’s all worth telling the story. Really. Well, back to work. Life is good. Live it!